Kayla Goes To The Specialist

Our little Kayla who is almost 5 has a bit of a problem of the sleep disorder kind, we thought it would be good idea to share our experience as we work through the process and journey.

Firstly, a little about Kayla, she is our gorgeous 'almost 5 ' year old, she is bright and clever and quite a character, to sum her up best and to lend an observation from our family GP " Kayla is just about the most strong willed under 5 year old I have encountered", this may have something to do with the time she needed assistance from the male GP practising in the adjoining room when Kayla was in for a regular injection! But heh that’s another story!!

Kayla, has never been a great sleeper, in fact we still attend to her more in during the middle of the night in a single week then we have ever for Georgia (Kayla’s little sister she is almost 3).What we are talking about here must hit home with a lot of us, it’s not uncommon and our experience is not unique we know. Being up at all hours of the night is most certainly something most parents go through.

What is different about Kayla is that she developed a way to comfort herself back to sleep which is not so common. It’s been described a few ways "rhythmic rocking motion sleep disorder" being one of them.

She tucks in her arms, points her bum in the air and begins to rock. Vigorously. Sometimes side to side but mostly forwards and backwards. Did we say vigorously? Some nights the house awakens to what seems like an earthquake, this is an exaggeration of course but not too far from the truth.

There is nothing quite like waking up to loud knocking sound coming from your little girls room! And it’s probably taken 4 years to realise , no it’s not a burglar breaking through the front door… after all it’s been quite startling at the best of times.

Kayla has had this problem since 3 months old.

For a long time we put it down to having rocked her to sleep ourselves, too much and too often, it seemed to be the only way to get her to sleep, and when you are faced with sleep deprivation every day you know you will always take the ‘sleep maker’ over a completely sleepless night.

The general consensus when talking with friends, family and doctors was Kayla would grow out of it and this normally occurs before 5 years of age. Kayla turns 5 in August and showing no sign of stopping. It’s reached the point where we realise this may very well be a problem for a long long time.

It was interesting to read on the web when researching the topic that some people with ‘rhythmic’ sleeping disorder were embarrassed by it, never talked about it and continued to have the problem throughout their adult life. As parents this isn’t something we want Kayla to carry forward. We read an almost identical story to ours and were keen to follow it through except the post went cold just when it seemed results would be forth coming about the disorder and subsequent treatment.

It’s always disappointing when you get into a story which stops suddenly leaving you without 'the end' you were so anxiously awaiting and hoping to learn from...

So Kayla went to the specialist.

Before meeting with the specialist we were told it would be helpful to have it filmed and to bring it along with us to the consultation. So we did. We must say watching it played back is actually more heart breaking then seeing it in real life. It’s hard to explain but when you see it in real life you are conditioned and simply numb to it and you are simply there to nudge Kayla and have her return to a normal sleeping position.

In playback though, you are removed and perceive it in a completely different light.

The outcome.

Not rocking to put herself to sleep rules out behavioural issues and she is definitely normal (thank goodness for that) and we also learned what we already knew which was she 'rocks' to put herself back to sleep. The disorder looks to be heavily related with sleep apnea. Sometimes Kayla sounds like she’s snoring even when she’s awake, for the most part she is very tired when this happens but it is a telling tale and suggests obstruction as well. Adenoids, tonsil’s? Not sure yet..

The consultation concluded that a sleep study is required, we are told this will certainly be more revealing and will go a long way towards treating little Kayla’s problem. Getting Kayla ‘hooked in’ is going to be a challenge, she was not impressed when shown pics of how it works but we are assured these guys ‘know all the tricks’ and we have to trust they know what they are doing based on countless experiences which I’m sure they do.

So mummy will be spending the night with Kayla and for the most part it’s been dressed up as a ‘pyjama party’ (no pun intended), this all happens in 3-4 weeks’ time. It should be interesting to say the least and we are most hopeful it gives us some solid direction in treating Kayla’s ‘rhythmic rocking’ sleep disorder.

Stay tuned for ‘Kayla’s takes the Sleep Study’

5 thoughts on “Kayla Goes To The Specialist”

  • admin

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  • Parents Like Us
    Parents Like Us November 6, 2011 at 3:16 am

    Thanks for taking the time to add your thoughts.

    We would love for you to share our blog with your followers, and hope that this will prompt others to seek help for their sleep problems.

    Reply